Spring is here, and boy are we ready to play outside! I have been trying to take Wilson to the park as much as possible, and I think it's as good for me as it is for him! He just got his first soccer ball, and it might have replaced J as his best friend. Everything right now is about soccer and "my soccer ball." It's the funniest thing, and I can't wait till fall when he can start soccer.
We found out last week that Wilson has Sensory Processing Disorder, but I'm not exactly sure what that means yet. A book I was directed to by one of our therapists, "The Out of Sync Child" tells me that it is "the inability to use information received through the senses in order to function smoothly in daily life." I haven't gotten too far yet, but so far, everything describing a sensory-seeking child seems to be all Wilson. I am certainly interested to see what else this book has in store. We are also waiting on a report from the wonderful woman who did his assessment on exactly what she saw when she spent time with him at his daycare. I am anticipating this will shed some light as to what we as his parents can do to best satisfy our little monster.
We are working on finding an occupational therapist who is available to take him on as well as wondering exactly how "therapy-friendly" his daycare truly is. As of now, they are showing quite a bit of resistance and a serious lack of concern for his best interest (IMO.) While I realize they have a job to do, we need to do what's best for him. I am currently exploring options recommended by his PSC and assessor.
At this point, I'm just praying that we get things moving quickly and in a direction that is the most effective method for Wilson.
On a side note, Happy Happy Birthday to our friend Jill. Our family loves you and your boys, and we hope today is fabulous.
Monday, March 23, 2009
Thursday, March 5, 2009
GI Follow-Up
Greetings, I come to you first in prayer that the God who is bigger than any of us has a plan. A big plan, because no one else seems to.
We have been working on the sweet potatoes, and Tuesday night, right after dinner, Wilson broke out into hives, as I posted. They went away, but at four o'clock this morning, we heard him coughing and crying, so hubby went in to check up on him, and found he had vomited and had a very high fever. We gave him Tylenol, then Motrin a few hours later when it wasn't going down. I just prayed for it to at least go down, then we started our morning.
This morning, my wonderful friend, Jessica, accompanied us to Children's Hospital for Wilson's GI follow-up from two months ago. Hubby had a very important meeting at work he wasn't able to miss, and her joining us was such a blessing and help, because it enabled me to talk to the doctor without worrying about his behavior (or his obsession with the phone in the offices or washing his hands one thousand times while he's there.)
Dr. Franciosi basically told us that he was quite certain Wilson should not be eating sweet potatoes, and he wanted me to call the allergist about it. He then proceeded to tell us that he is fine, we should be thankful for his size (36 3/4 inches and 35 lbs.) and not worry so much about the allergies.
*Mom time* This doctor obviously has never had to take a child with 15+ food allergies to a family dinner with absolutely no knowledge of how he was going to feed them and keep the child safe. He has never had to worry every minute of his day that someone ate an egg then touched him, causing anaphylaxis. But I have, and I know what that is like.
I also know that this doctor sees many many children that are much worse than Wilson and has many more issues than he does. But those are not my children, and fortunately for me, we are not in that circumstance. That doesn't mean I do not want to know what is going on.
So here it is. God, take it. Take my son in your hands and HEAL HIM. HEAL MY BABY. You are the only one who is able to do this. I have nothing without you and everything with you. Please use us, our story, our family for Your glory and Your good. I give up, it's all yours.
Blessings, friends. Thanks for the prayers.
We have been working on the sweet potatoes, and Tuesday night, right after dinner, Wilson broke out into hives, as I posted. They went away, but at four o'clock this morning, we heard him coughing and crying, so hubby went in to check up on him, and found he had vomited and had a very high fever. We gave him Tylenol, then Motrin a few hours later when it wasn't going down. I just prayed for it to at least go down, then we started our morning.
This morning, my wonderful friend, Jessica, accompanied us to Children's Hospital for Wilson's GI follow-up from two months ago. Hubby had a very important meeting at work he wasn't able to miss, and her joining us was such a blessing and help, because it enabled me to talk to the doctor without worrying about his behavior (or his obsession with the phone in the offices or washing his hands one thousand times while he's there.)
Dr. Franciosi basically told us that he was quite certain Wilson should not be eating sweet potatoes, and he wanted me to call the allergist about it. He then proceeded to tell us that he is fine, we should be thankful for his size (36 3/4 inches and 35 lbs.) and not worry so much about the allergies.
*Mom time* This doctor obviously has never had to take a child with 15+ food allergies to a family dinner with absolutely no knowledge of how he was going to feed them and keep the child safe. He has never had to worry every minute of his day that someone ate an egg then touched him, causing anaphylaxis. But I have, and I know what that is like.
I also know that this doctor sees many many children that are much worse than Wilson and has many more issues than he does. But those are not my children, and fortunately for me, we are not in that circumstance. That doesn't mean I do not want to know what is going on.
So here it is. God, take it. Take my son in your hands and HEAL HIM. HEAL MY BABY. You are the only one who is able to do this. I have nothing without you and everything with you. Please use us, our story, our family for Your glory and Your good. I give up, it's all yours.
Blessings, friends. Thanks for the prayers.
Tuesday, March 3, 2009
in addition...
Please pray! Wilson is breaking out into serious hives, and we have him an antihistamine to stop them, but I'm going to have to watch them until bed, along with watch his breathing. Just not sure where this is coming from...
Tastes like chicken? Nah...
Greetings, reader (I say that because I know only one of you read this thing. ha.) Last week, we eliminated chicken completely from Wilson's diet, and it worked so well. He didn't bite at school, and while he still ran out of his classroom and his Kid's Club room at church, his behavior was leaps and bounds better than he has been in weeks. I didn't notice a difference at all with meat vs. no meat, so we called to check in with the allergist this morning.
His news was wonderful! We are going to eliminate chicken and beef (meat-wise) for six months and see how everything goes. All foods that he is not testing positive to (including the fabulous five we started this week) are fair game, just one new food per week, and we will check in with him in SIX MONTHS!!! He completely released Wilson unless we have issues with trying the new foods, and he suggested we introduce fish as a way to get more protein in his diet. WOW!! What a change from even a month ago.
Sweet potatoes are going well so far, except I'm not sure if we can get him to stop eating them! Let's see if this happens with peas next week. What a blessing this is to be able to give him the foods he loved so much before we were told he was allergic to them. I'm getting excited about the healthy and yummy foods we will be able to give him in the next few weeks and months.
Thank you so much "reader" for your prayers, love and support while we are on this journey. We will have a follow-up visit with the GI doctor Thursday, and I am hoping for more good news. As always, I will keep you updated.
Blessings.
His news was wonderful! We are going to eliminate chicken and beef (meat-wise) for six months and see how everything goes. All foods that he is not testing positive to (including the fabulous five we started this week) are fair game, just one new food per week, and we will check in with him in SIX MONTHS!!! He completely released Wilson unless we have issues with trying the new foods, and he suggested we introduce fish as a way to get more protein in his diet. WOW!! What a change from even a month ago.
Sweet potatoes are going well so far, except I'm not sure if we can get him to stop eating them! Let's see if this happens with peas next week. What a blessing this is to be able to give him the foods he loved so much before we were told he was allergic to them. I'm getting excited about the healthy and yummy foods we will be able to give him in the next few weeks and months.
Thank you so much "reader" for your prayers, love and support while we are on this journey. We will have a follow-up visit with the GI doctor Thursday, and I am hoping for more good news. As always, I will keep you updated.
Blessings.
Subscribe to:
Posts (Atom)