Wednesday, December 31, 2008

Happy New Year

So, it's that time of year again, out with the old, in with the new. Blah blah. This year, however, its different at our house. As many of you know, monster's test came back clear, signaling everything is all right. The doctors, however, seem to disagree and have referred us to other doctors to find out what is happening to our boy.

Monday, we have our first meeting at the EE clinic at Children's hospital. We will be seeing world-renowned doctors who specialize in these diseases and want to help him get better. I feel very fortunate to be able to send my son to such amazing providers.

We also had our in-home evaluation last night with regard to his sensory and behavioral issues. Turns out, he is quite bright (her words, not mine!) But does need some therapy time. While I am trying not to feel like a failure as a mom, I'm trying to be thankful that the state will help us with some of the financial aspect of these therapies. They will work with us at home as well as at his day care, which is nice.

Bottom line is I am super blessed right now, very lucky to be able to give my monster these options for his life. Please keep a few of my friends in your prayers. Someone I work with has cancer, and its not looking good. At all. We've worked together for almost 4 years, and this is hard to see happen, especially since he lives in Columbus. Another friend's family life is being completely shaken, and I pray He strengthens and heals her and her family.

Blessings to you and yours, wilsonsmom

Thursday, December 4, 2008

Sitting, Waiting, Wishing

Sorry to be a Debbie Downer, but this blog is a venting one...

Today was booger's 2 year check up, which was perfect timing because his procedure is Tuesday. We were hoping we could just make sure everything is OK, avoid a flu shot, and go on our merry way. As I'm in the office speaking with our pediatrician (whom I ADORE and respect whole heartedly) about some of what we have been facing the past few months with his biting, behavior, and lack of appetite, he suggests that we send him to be evaluated for developmental disabilities. I understand that this may open doors for better understanding exactly what is causing some of the unwanted behavior, especially since we are disciplining him and encouraging the good behavior, while discouraging the poor choices.

My problem is I am exhausted, I am worn down, I am beat. Every time we visit a doctor, I feel as if something else is catastrophically wrong. I realize I have so much to be thankful for, but I am still feeling beat down and pooped on. We just found out he is allergic to so many new foods, may have a GI disease that will alter his entire life, and now we are testing for disabilities. I have spent the last 2 years and 9 months focusing on doing everything that is best for my little booger, and it is all backfiring. I just feel like something is always wrong with him, and I don't understand why.

In addition, we have been preparing for his "cleanse" prior to his test and have (finally!) eliminated his night night cup. As a result, he has not slept in days. Which means we have not slept in days. He isn't even napping, right now, I'm just hoping that he will even rest quietly. This is also probably a source of my frustration, but I still feel this way.

Again, sorry to be a downer, I know He will provide healing and help for our family, I just have to get this out for a minute.

Blessings, wilsonsmom