Greetings, I come to you first in prayer that the God who is bigger than any of us has a plan. A big plan, because no one else seems to.
We have been working on the sweet potatoes, and Tuesday night, right after dinner, Wilson broke out into hives, as I posted. They went away, but at four o'clock this morning, we heard him coughing and crying, so hubby went in to check up on him, and found he had vomited and had a very high fever. We gave him Tylenol, then Motrin a few hours later when it wasn't going down. I just prayed for it to at least go down, then we started our morning.
This morning, my wonderful friend, Jessica, accompanied us to Children's Hospital for Wilson's GI follow-up from two months ago. Hubby had a very important meeting at work he wasn't able to miss, and her joining us was such a blessing and help, because it enabled me to talk to the doctor without worrying about his behavior (or his obsession with the phone in the offices or washing his hands one thousand times while he's there.)
Dr. Franciosi basically told us that he was quite certain Wilson should not be eating sweet potatoes, and he wanted me to call the allergist about it. He then proceeded to tell us that he is fine, we should be thankful for his size (36 3/4 inches and 35 lbs.) and not worry so much about the allergies.
*Mom time* This doctor obviously has never had to take a child with 15+ food allergies to a family dinner with absolutely no knowledge of how he was going to feed them and keep the child safe. He has never had to worry every minute of his day that someone ate an egg then touched him, causing anaphylaxis. But I have, and I know what that is like.
I also know that this doctor sees many many children that are much worse than Wilson and has many more issues than he does. But those are not my children, and fortunately for me, we are not in that circumstance. That doesn't mean I do not want to know what is going on.
So here it is. God, take it. Take my son in your hands and HEAL HIM. HEAL MY BABY. You are the only one who is able to do this. I have nothing without you and everything with you. Please use us, our story, our family for Your glory and Your good. I give up, it's all yours.
Blessings, friends. Thanks for the prayers.
Thursday, March 5, 2009
Tuesday, March 3, 2009
in addition...
Please pray! Wilson is breaking out into serious hives, and we have him an antihistamine to stop them, but I'm going to have to watch them until bed, along with watch his breathing. Just not sure where this is coming from...
Tastes like chicken? Nah...
Greetings, reader (I say that because I know only one of you read this thing. ha.) Last week, we eliminated chicken completely from Wilson's diet, and it worked so well. He didn't bite at school, and while he still ran out of his classroom and his Kid's Club room at church, his behavior was leaps and bounds better than he has been in weeks. I didn't notice a difference at all with meat vs. no meat, so we called to check in with the allergist this morning.
His news was wonderful! We are going to eliminate chicken and beef (meat-wise) for six months and see how everything goes. All foods that he is not testing positive to (including the fabulous five we started this week) are fair game, just one new food per week, and we will check in with him in SIX MONTHS!!! He completely released Wilson unless we have issues with trying the new foods, and he suggested we introduce fish as a way to get more protein in his diet. WOW!! What a change from even a month ago.
Sweet potatoes are going well so far, except I'm not sure if we can get him to stop eating them! Let's see if this happens with peas next week. What a blessing this is to be able to give him the foods he loved so much before we were told he was allergic to them. I'm getting excited about the healthy and yummy foods we will be able to give him in the next few weeks and months.
Thank you so much "reader" for your prayers, love and support while we are on this journey. We will have a follow-up visit with the GI doctor Thursday, and I am hoping for more good news. As always, I will keep you updated.
Blessings.
His news was wonderful! We are going to eliminate chicken and beef (meat-wise) for six months and see how everything goes. All foods that he is not testing positive to (including the fabulous five we started this week) are fair game, just one new food per week, and we will check in with him in SIX MONTHS!!! He completely released Wilson unless we have issues with trying the new foods, and he suggested we introduce fish as a way to get more protein in his diet. WOW!! What a change from even a month ago.
Sweet potatoes are going well so far, except I'm not sure if we can get him to stop eating them! Let's see if this happens with peas next week. What a blessing this is to be able to give him the foods he loved so much before we were told he was allergic to them. I'm getting excited about the healthy and yummy foods we will be able to give him in the next few weeks and months.
Thank you so much "reader" for your prayers, love and support while we are on this journey. We will have a follow-up visit with the GI doctor Thursday, and I am hoping for more good news. As always, I will keep you updated.
Blessings.
Tuesday, February 24, 2009
What a month!
Sorry I haven't been the best blogger every as of late, the last few weeks have been beyond overwhelming. For starters, wilsonsmom got a new job! Praise God for wonderful opportunities!! It is exactly what I need right now, and I am trusting God will provide my clients with a way to find me, and if not, fill those spots with clients He wants me to have.
Next, we have been quite busy with doctors for Wilson. The beginning of this month, I had a long talk with the allergist and explained my frustrations, concerns, etc. He asked us to come in the next morning (about 3 weeks ago) and have some tests done. We checked to ensure his anatomy was working correctly, and it IS!! This basically means his digestive system, intestines, bowel, etc. all are without defects and kinks. Which is excellent news for us, but also leaves us with more questions. While we were there, we also had a RAAST allergy test performed, which is done through blood. The results were astounding.
Wilson is testing "not-allergic" to sweet potatoes, corn, peas, soy, and oats. If you pay attention to ingredients in food you eat, you will realize this is a wonderful victory for our family. We will start next week introducing one new food each week. I will be in constant communication with the allergist during this time, giving results and receiving input for new ideas for what's wrong with this boy. We will be watching out for trouble breathing, hives, vomiting, diarrhea, among other things, which also means we will probably not be going out too much, to avoid a mix-up with these results.
This week we are also eliminating meat for dinner Monday, Wednesday, and Friday in order to try to decipher the reason for his poor behavior. He has been having a lot of difficulties at school with biting and running out of his classroom during lesson times. We are working on the biting, and that is getting better, but his teachers are worried about him nonetheless, so here goes nothing.
I am trusting that God will hold my little monster in His arms and keep him safe during this time and protect him during these trials. I am also praying for more new foods we can give him, and we've already been coming up with creative ways to tell those we love.
Blessings, wilsonsmom
Next, we have been quite busy with doctors for Wilson. The beginning of this month, I had a long talk with the allergist and explained my frustrations, concerns, etc. He asked us to come in the next morning (about 3 weeks ago) and have some tests done. We checked to ensure his anatomy was working correctly, and it IS!! This basically means his digestive system, intestines, bowel, etc. all are without defects and kinks. Which is excellent news for us, but also leaves us with more questions. While we were there, we also had a RAAST allergy test performed, which is done through blood. The results were astounding.
Wilson is testing "not-allergic" to sweet potatoes, corn, peas, soy, and oats. If you pay attention to ingredients in food you eat, you will realize this is a wonderful victory for our family. We will start next week introducing one new food each week. I will be in constant communication with the allergist during this time, giving results and receiving input for new ideas for what's wrong with this boy. We will be watching out for trouble breathing, hives, vomiting, diarrhea, among other things, which also means we will probably not be going out too much, to avoid a mix-up with these results.
This week we are also eliminating meat for dinner Monday, Wednesday, and Friday in order to try to decipher the reason for his poor behavior. He has been having a lot of difficulties at school with biting and running out of his classroom during lesson times. We are working on the biting, and that is getting better, but his teachers are worried about him nonetheless, so here goes nothing.
I am trusting that God will hold my little monster in His arms and keep him safe during this time and protect him during these trials. I am also praying for more new foods we can give him, and we've already been coming up with creative ways to tell those we love.
Blessings, wilsonsmom
Monday, February 2, 2009
Quick update
We have had a tough time getting Wilson's medications pre-authorized as required by the insurance company, so I have been practically stalking the allergist's office as well as the GI's office. (oops!) We finally got a call back from both, and I expressed concern that I had not yet heard from the allergist as a follow-up, so she had him call me back today. I shouldn't have done that.
We spoke for about fifteen minutes, and I expressed several concerns I am having, and he said he wanted to see us tomorrow. A few minutes later, the GI nurse called and said they had him scheduled for some tests in the morning. Apparently, the doctors want to make sure that his anatomy is correct and functioning properly before we proceed with anything else.
Tomorrow, I am just going to push the allergy issue. I can't figure out why every allergy test pops up more foods. So let's just hope that we can keep him calm for the entire day while he's there.
Blessings.
We spoke for about fifteen minutes, and I expressed several concerns I am having, and he said he wanted to see us tomorrow. A few minutes later, the GI nurse called and said they had him scheduled for some tests in the morning. Apparently, the doctors want to make sure that his anatomy is correct and functioning properly before we proceed with anything else.
Tomorrow, I am just going to push the allergy issue. I can't figure out why every allergy test pops up more foods. So let's just hope that we can keep him calm for the entire day while he's there.
Blessings.
Monday, January 26, 2009
Adroable
Yesterday morning, we were in the truck driving to church after picking Wilson up from my mom's (yay date night!) when I sneezed. Wilson proceeded to say "Bless you Mamma." Seriously, I melted more than ever. What a sweet sweet boy.
We start speech and feeding therapy tomorrow, which is also our friend Justice's birthday. Hooray for being two. Wilson's Grandma Shelley also arrives in Cincinnati on Wednesday, and they haven't seen each other in about 26 months. How exciting.
Blessings, wilsonsmom
We start speech and feeding therapy tomorrow, which is also our friend Justice's birthday. Hooray for being two. Wilson's Grandma Shelley also arrives in Cincinnati on Wednesday, and they haven't seen each other in about 26 months. How exciting.
Blessings, wilsonsmom
Tuesday, January 20, 2009
Interesting.
Today, we had an appointment with one of the best pediatric allergists in the world. And we still don't know much. I feel like we had to convince him to do another round of allergy testing, and hubby said he felt like they didn't believe Wilson is as bad as he is. They just kept saying "tell me about his allergies." Gee, that's not the most broad question EVER.
He finally tested for 45 foods, and Wilson tested positive for peanut, milk, egg, almond, banana, beef, chicken, turkey, pork, white potato, and barley. The weird thing is we aren't sure what this means. He isn't having awful reactions right now while eating white meat, so we are going to continue to feed him the same things as before at least for now. The allergist and GI are going to talk Thursday, and call me sometime this week or next and let me know what they think is best and where we need to proceed.
The allergist also says there is very little chance that Wilson has EE. This doesn't rule it out, but it could just be allergies. If it is just allergies, we would start going to see the allergist regularly, and do other forms of allergy testing (we only did the skin prick test, which made hubby and I both much more at ease.) Depending on how those turn out, we may start attempting to reintroduce new foods one at a time.
I know it seems like we got somewhere, but hubby and I still feel stagnant. We keep seeing these specialists, and this one's supposed to be better than the previous, and the next one will have the answers, etc. Except that when we go, there are still no answers, no treatment plans, nothing. We just want something to hold as truth, someone to give us answers, hope, anything.
On a different note, what a funny thing to watch Wilson dance and clap during the Neighborhood Ball on television tonight. Our President is now "Morebama" according to the monster.
Peace, Wilsonsmom
He finally tested for 45 foods, and Wilson tested positive for peanut, milk, egg, almond, banana, beef, chicken, turkey, pork, white potato, and barley. The weird thing is we aren't sure what this means. He isn't having awful reactions right now while eating white meat, so we are going to continue to feed him the same things as before at least for now. The allergist and GI are going to talk Thursday, and call me sometime this week or next and let me know what they think is best and where we need to proceed.
The allergist also says there is very little chance that Wilson has EE. This doesn't rule it out, but it could just be allergies. If it is just allergies, we would start going to see the allergist regularly, and do other forms of allergy testing (we only did the skin prick test, which made hubby and I both much more at ease.) Depending on how those turn out, we may start attempting to reintroduce new foods one at a time.
I know it seems like we got somewhere, but hubby and I still feel stagnant. We keep seeing these specialists, and this one's supposed to be better than the previous, and the next one will have the answers, etc. Except that when we go, there are still no answers, no treatment plans, nothing. We just want something to hold as truth, someone to give us answers, hope, anything.
On a different note, what a funny thing to watch Wilson dance and clap during the Neighborhood Ball on television tonight. Our President is now "Morebama" according to the monster.
Peace, Wilsonsmom
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